Saturday, April 30, 2011

Help A D-Rockstar Out! (HAWMC Day 30)

Today's Prompt: Gobbledygook Day. In health communities there is a certain lexicon that only those on “the inside” can understand. So today, for our last prompt, make up a new word to use. 

D-rockstar: a person who is a total rock star in the D world.  May also be used as a hashtag (#drockstar).

You know who is a total D-rockstar?  Victoria Cumbow

Victoria lives in Alabama.  And unless you've been hiding under a rock, I'm sure you've heard of the devastation that occurred there this week.  

A LOT of help is needed!!! Go check out Victoria's blog to see how you can help.

In addition to monetary donations, many diabetics have lost all their supplies in the storms.  If you have extra supplies laying around or can go buy some, they are desperately needed!!!!  Non- prescription supplies including, but not limited to:
  • meters
  • test strips
  • lancets
  • glucose tabs
  • ketone strips
  • syringes
  • insulin
  • anything else you can think of
If you have supplies to send, please email me or contact Victoria.

This is why Victoria is a D-rockstar.  My grandparent's hometown was nearly wiped off the map by a tornado almost 10 years ago, and that was traumatic enough.  I can't even imagine how Victoria and all the others affected by the storms must be feeling.  She has been working tirelessly to help people in her community.  The least we can do is send some supplies her way!

So let's help a D-rock star out!!!

From Victoria's post:

"If you have money, donate to the Red Cross by texting “Red Cross” to 90999 to have $10 added to your phone bill.

To send money to Huntsville’s local office, mail to American Red Cross, 1101 Washington Street, 35801. Designation: Tornado relief.

You can send national donations to theAmerican Red Cross, P.O. Box 37243, Washington D.C. 20013. Designation: Tornado relief."

Note: I did not invent the term D-rockstar.  I wanted a term that I could use to blog about what Victoria is doing.  There is a site out there called Diabetic Rockstar.  I am not a member of that site, nor did they ask me to use the term.  I just found it fitting!

*Thanks for sticking with me through all the HAWMC posts this month!  I'll be back after a little blogging break, for the sake of my sanity.  While I'm gone, send some stuff to Victoria.  Love you all!*

Friday, April 29, 2011

Cliche (HAWMC Day 29)

Today's Prompt: Start out by thinking of a health cliche that really bugs you. What are you tired of people asking you or saying to you again and again about your health or health condition? Write it down. Then, instead of critiquing it (as we often do) – today, reclaim it!

Cliche- Type 1 Diabetics cannot eat sugar.

Type 1 Diabetics CAN eat sugar.  Here are some things I love to eat sometimes, including, but not limited to:
  • cupcakes
  • Ben & Jerry's ice cream
  • grandma's chocolate chip cookies
  • mom's strawberry shortcake
  • frozen custard
  • grandma's red velvet cake with buttercream frosting

Do I eat this stuff all the time?  No.

But I can and do when I want to! 

Thursday, April 28, 2011

I Used To Be... (HAWMC Day 28)

Today's Prompt: The idea is: you start every paragraph of your short story (or your poem) with the sentence “I used to be…” and end each with “but I’m not any more.”

I used to be apathetic, but I'm not anymore.
I used to be withdrawn, but I'm not anymore.
I used to be hesitant to speak out, but I'm not anymore.
I used to be afraid of my D, but I'm not anymore.
I used to be overwhelmed with the feeling I was the only one, but I'm not anymore.

Wednesday, April 27, 2011

Daring (HAWMC Day 27)

Today's Prompt: Quote prompt! Today use a quote to set you off and writing. Pick a quote that inspires you positively or charges you negatively.

"Welcome to the fallout
Welcome to resistance
The tension is here
Tension is here
Between who you are and who you could be
Between how it is and how it should be"

"Maybe redemption has stories to tell
Maybe forgiveness is right where you fell
Where can you fun to escape from yourself?
Where you gonna go?
Where you gonna go?
Salvation is here"

"I dare you to move
Dare you to move
Dare you to lift yourself up off the floor
Dare you to move
Dare you to move
Like today never happened
Today never happened before"

So I thought it might get a bit long to quote all the lyrics, so I narrowed it down a bit.  As I've mentioned before, song lyrics are important to me.  I find great comfort, strength, and empowerment in music.

Switchfoot is my favorite band, and this song is one of my very favorites of theirs.  I don't know why these particular words resonate so much with me, but they do.  Ever since the first time I heard them.

I first started listening to Switchfoot after I lost a dear friend.  That experience changed my life, and I found great solace in their music.  I listened to their A Beautiful Letdown CD over and over again.

And these words have stuck with me.  I find them incredibly inspiring. No matter what, there is redemption.  Forgiveness.  Escape from the parts of myself I'm not proud of.  Someone to run to.

All I need to do is move.  To get up off of the floor.  Today is happening.  And redemption, forgiveness, and salvation will be there again tomorrow.

Tuesday, April 26, 2011

Turtles (HAWMC Day 26)

Today's Prompt: Spirit Animal Day.  A spirit animal (or power animal) is a figure used to represent one’s inner qualities embodied by an animal.  Give your health or condition a spirit animal.

Ok, so I was having a lot of trouble getting inspired for this prompt.  The obvious animal is a unicorn, but Ashley already took that one!

So I tweeted.  Asked for help from my twitter friends.  And my friend Briley said, "turtle.  it lives forever."

And I LOVE this.  

photo by ralph and jenny

The spirit animal for my diabetes is a turtle.  It is rather innocuous looking at first glance.  Moves very slowly.  And as Briley said, it lives, maybe not forever, but for a really long time.  And my D is with me for the long haul.  

Though turtles may seem harmless, some are not.  Remember snapping turtles, anyone?  They can lash out and strike when you least expect it.  

But turtles are slow.  And no turtle's gonna stop me! :)

Monday, April 25, 2011

Fun With A Red Pen (HAWMC Day 25)

Today's Prompt: start by finding an old post of yours from months (or years) ago. Revise it as radically as you can. 

This was the third blog entry I wrote, and my first brutally honest one.  I picked this post to edit because they long and not entirely relevant intro has been bugging me ever since I posted it.  I like the post overall, but it felt good to slash that part!  Whew!  Oh, and you can read the original post here.

Digging My Way Out

Buckle up, kids, this could be a long one.

Ok, so you should probably know that I'm a bibliophile and overall english nerd.  If I'd had time, I would have loved to add an English major in college (as if I didn't do enough writing with my psychology and theology majors).  I worked in the writing lab, and am a total word nerd.  I get it from my dad--the human dictionary.  Back in college, I used to call him when writing a paper and say, "Dad, I'm thinking of another word for ________," and he would rattle off a list of synonyms.  I even called him on behalf of a few of my roommates.

I also seem to be developing this (sometimes annoying) habit.  I love words, so I'm going to bore you with some definitions now (thanks  Apathy means absence or suppression of passion, emotion, or excitement; also freedom from emotion of any kind.

Burnout (also means fatigue, frustration, or apathy resulting from prolonged stress, overwork, or intense activity.

Huh, wow, I didn't even realize apathy was in the definition of burnout.  Guess that means I'm on the right track.

So, now you know what I'm talking about.  Apathy and burnout.  Welcome to my life for the last few years.  I know I'm not alone in this.  A number of people have blogged about their burnout (Kelly did and also posted some burnout links here).  And Kerri mentioned apathy in her post.

I am well acquainted with these terms.  As my bio says, I was diagnosed with D at age 10, less than 2 weeks before the start of 4th grade.  I'll spare you my life story (for now), but all in all, I don't even remember life before D.

My D care has been ok over the years.  We all know how hard it is to balance the bgs of a kiddo, but thanks to a lot of work on my mom's part, mine weren't too bad.  And college brings a host of it's own challenges.  Still, my A1Cs have remained consistently in the 7s.  At my last endo appointment, it was 8.0, the highest it's been in my adult life.  Which amazes me.  It really does.  When my endo read the number, I breathed a huge sigh of relief.  I had been expecting much worse.

I'm not sure when the burnout started, but it was sometime after I got married.  Not that this has anything to do with my wonderful husband--far from it.  I love him more than anything in the world!  He's always so supportive and encouraging, and strives to understand as much as any Type 3 (non-D loved ones) can.

So who knows why?  But I had it--both apathy and burnout--hardcore.  I still went through all the motions like a good little D patient.  Still checked my sugars at least 4 times a day.  Bolused for my food, changed my sets out when I should have, went to the endo.

But I didn't care.  Not about any of it.  Not that my A1C was slowly rising.  Not that I was constantly running in the 200-300s.  Not that I only counted carbs when I ate something out of a box with a nutrition label.  Everything else was SWAGing.

I should have been upset.  Looking back, I'm horrified that I did that to myself.  Also not helping my sugars was my emotional eating.  That's something I've struggled with for a long time.  Stuffing my face with empty carbs and calories, SWAG bolusing, and not even knowing why.

Not that I cared why.  Looking at my wedding pictures made me sick.  Good grief, was I ever that thin?  All my emotional eating led to me gaining a good bit of weight, and go through A LOT of insulin.  And then the guilt sets in.  You need to lose weight.  Don't eat that.  You need to get your bs under control.
But I just couldn't.  It was easier to stuff my face and not care what the number on the meter said.  It was easier than dealing with it.

But dealing with what?  I didn't know.  I love my husband.  I live close to my family, who are all nothing but supportive.  I have wonderful friends (even if most of them live out of state).  And I love my job, not that it doesn't stress me out sometimes.  So what was wrong?

Now, I can see it.  All the emotional eating and D apathy were symptoms of a severe case of D burnout. Serious, hardcore, deep burnout.

Fast forward to November 2010.  I was at the end of my rope.  My endo appointment was coming up.  I'd already cancelled it twice because I was afraid of what my A1C would be.  I knew I needed to go, but I was terrified.  What would the number be?  What would my endo say?

On a whim, I decided to join Juvenation, an online community for t1s and their families.  Juvenation has been my saving grace.  I didn't even realize how alone I felt until I started poking around the site and reading some of the threads, posts, and blogs.  I had an epiphany.

I.  Am.  Not.  Alone.  I AM NOT ALONE!!! I found support.  I found a name for what I was struggling with--burnout.  Naming my struggle gave me power over it.  I knew I was going to be ok when I read this post by my now-friend C (thanks for that one, by the way).

Through Juvenation, I was introduced to the DOC (Diabetic Online Community).  I started reading every d-blog I could find.  I got a Twitter account.  I am engaged and involved in my life again--the apathy is gone.

This is the part where I thank all my fellow DOCers.  Without all of you, I know I would still be entrenched in that burnout.  You are helping me dig my way out, one day at a time.  I owe you all so much.  More than words can say.

That's why I started this blog.  If the hell I have been through can help just one person, then it all will have been worth it.  I know it sounds cheesy and corny, but it's true.  I know how you feel.  I have been there.  And thanks to my family, friends, new CGM, and the DOC, I am digging my way out.

Sunday, April 24, 2011

The Best Thing (HAWMC Day 24)

Today's Prompt: What was the best thing that happened to you last week? 

Ok, so the best thing about last week was without a doubt my entire weekend!  And yes, I'm sure that I cannot pick just one thing.  

We went to my husband's hometown for the weekend.  Here are the highlights of our fabulous trip:

  • spending time with J's parents (they're awesome!)
  • having lunch with two of my best friends from college whom I don't get to see very often. Oh, how I miss those girls!
  • getting to see J's best friend, his wife, and their beautiful kids.  It was great to catch up, and dye some Easter eggs, of course.
  • Eating a huge Easter meal with J's family, including my sister and brother-in-law, as well as my nieces and nephew.  Oh, and of course, we had an Easter egg hunt!
So you see why I can't pick one thing.  And D?  D was on the back burner this weekend.  I SWAGed my way through the massive amount of food consumed, and managed to stay under 300, so I'm pleased overall.

Now, I need to unpack and go to bed.  I hope everyone has a wonderful week!

Saturday, April 23, 2011

Rhyme Time (HAWMC Day 23)

Today's Prompt: Dr. Seuss Day! Write a post with as many rhymes as you can.

Oh boy, oh boy, what to say?
How many rhymes can I make today?
Dr. Seuss is my favorite, and if I may
I'm counting on him to show the way.

My life is not exciting as a book
Written by him, but let's take a look.
There are no colorful creatures hiding in every nook
Or crazy concoctions that need a cook.

No Grinch, no Whos, though I do know a Sam
But this does not explain who I am.
Don't offer me green eggs and ham
But I do like tweets that start with #BAM

I have diabetes, it does not have me.
Come step in my shoes and you will see.
Sometimes things are crazy as can be
But I know I can count on the DOC!

Friday, April 22, 2011

Wacky Toothpaste (HAWMC Day 22)

Today's Prompt: Your doctor wrote you a wacky prescription. What is it?

So I have mixed feelings leaving the endo's office today.  I look again at the piece of paper in my hand.  It's a prescription, written in my endo's chicken scratch.

Evidently, there's some new medication that is supposed to work wonders.  It's some kind of newfangled toothpaste.

Toothpaste doesn't sound very exciting.  And while it won't eliminate the daily trips on the glucoaster, it claims to get rid of those pesky tooth sweaters! ;)

*ok, peeps, this is completely fictitious and entire made up by my exhausted brain. Just so we're clear. 

Thursday, April 21, 2011

Admiration (HAWMC Day 21)

Today's Prompt:  Who is someone you really admire?

Well, I really don't know what to write that wouldn't be repeating myself.  I've already written multiple posts about several people I admire.  Here's a recap, in no particular order.

I've blogged about my amazing parents multiple times.  My mom and dad are both heroes to me, and I don't know what I'd do without them.

Another person I admire so very much is my grandpa.  And Poppa is doing very well now.  Thanks to everyone who helped me through that difficult time.

My wonderful husband is someone else who continually amazes me.  Not only is he incredibly supportive in all areas of my life, but he's wicked smart too.  I could brag on him all day.

And finally, there's my friend Barb.  She is going through a lot right now.  But her positivity and contagious energy is truly inspiring.  Seriously, go check out her blog.  I guarantee you'll be inspired too.

Wednesday, April 20, 2011

On The Couch (HAWMC Day 20)

Today's Prompt: Your writing room. Our environment greatly affects how we feel and, often, how productive we are. Where do you normally write?

I write on my couch.  In our living room.  It's a nice neutral-colored couch (I like to accessorize with pillows).

This couch is the first piece of furniture J and I bought after we got married.  I know, awwwwwww, right? And thankfully we purchased the stain protection with it, so it survived the coffee I spilled on it yesterday.  

This is where I'm sitting as I write this.  On the couch.  MacBook on my lap.  TV on with the news.  J sitting next to me.

And I am perfectly content.

Tuesday, April 19, 2011

I Love My Endo (HAWMC Day 19)

Today's prompt: Health Activist Choice 2. Like our other first Health Activist Choice day, today’s topic is up to you! Write about something you’ve had on your mind.

Today, I have endo on the brain.  I went to my endocrinologist this morning, as I do every 3-4 months or so. 

I've only ever had two endos in my whole life.  The first was my pediatric endo, whom I saw till I was 18, and I've been with my current endo ever since.

I like my endo, I really do.  But boy howdy, was I a hot mess this morning.  What is it about going to the endo that causes me to completely freak out?  The butterflies in my stomach, the anxiety, the stress.  Yikes!  I love my endo.  He's a very kind, laid back kinda guy.  He has never, ever made me feel badly about myself.

Even back in November, when my A1c hit 8.0.  I was horrified and holding back tears, and he just said, "Well, that's higher than I'd like.  Let's see what we can do to get it down."

So he suggested I contact my insurance again about getting a CGM.  And they said yes!  So I've been using my CGM since December, and I LOVE it!!!  I'm kinda addicted...I might have a problem...

I also found the DOC back in November.  So, thanks mostly to my DOC friends, as well as the CGM, my A1c dropped from 8.0 in November to 7.6 in February.  Woot!

So, back to today.  I was really hoping my A1c had gone down.  I have been trying to take better care of myself.  But between being sick and my food issues rearing their ugly heads over the last few weeks, my averages weren't necessarily stellar.  But I was still hopeful.

So when the number came back at 7.6 again, I was really disappointed.  Yes, I'm still struggling with apathy, burnout, and my relationship with food, but damnit, I've been trying.  Grrrr!

While I was disappointed, my endo, on the other hand, was very pleased.  He said that it's ok that it didn't go down.  The fact that it stayed the same even with me being sick shows that I am trying and the CGM is helping.

And here I must apologize for not giving you guys credit where it's due.  I've mentioned the DOC to him before, but didn't expound on how much you all have helped me.  I should have done that today, but was too worked up.

Anyways, so endo made a few minor tweaks here and there, but was really pleased overall.  So I'm trying to focus on that.  The fact that it stayed the same is good.  I am making progress by doing the next thing.

I left the office still a little disappointed, but happy my endo was happy.  Oh, and all the stress and anxiety leading up to the appointment led to a lovely 248 and an afternoon of stubborn 200s.  Oh well.

But that A1c's gonna be lower when I go back in August, damnit!  I CAN do this!

Monday, April 18, 2011

My Day (HAWMC Day 18)

Today’s prompt is plain and simple: write a schedule of what your typical day looks like. Where does your health fit in?

-wake up

-wake up husband

-check blood sugar and calibrate cgm

-bolus for breakfast

-make COFFEE!

-watch today show and hop on Twitter while waiting 30 minutes for bolus to kick in (helps keep me from spiking in the morning- don't ask me why).

-eat breakfast

-brush teeth

-hair, makeup, etc.

-get dressed

-drive to work


-lunch- check bg, calibrate, bolus, wait 15 minutes, eat lunch


-afternoon break- check bg, calibrate, bolus, wait 15 minutes, and have a snack

-drive home (or to my parents' house for dinner, depending on the day)

-check bg, calibrate, bolus, wait 15 minutes, eat dinner

-go for a walk outside or go to the gym (4 days a week)

-drive home


-check in with J about our days

-watch TV, facebook stalk some people, and tweet with my DOC friends

-check bg, calibrate, bolus, wait 15 minutes, and have a snack

-more TV-FB-Twitter

-snuggle with hubs

-check bg and calibrate one last time

-brush teeth


Sunday, April 17, 2011

Peace (HAWMC Day 17)

Today's prompt: just attempt to capture a moment as realistically and nonjudgmentally as you can.  Today write something that’s mindful. That means forgo writing critically using abstractions and big ideas and just live in the reality of the moment you choose to capture.  

I am at my church.  At night.

I have attended church here my entire life.  Spent countless hours roaming the building.  

I open the heavy door and enter the sanctuary.  It is big.  It is dark.  It is quiet.  The only light in the sanctuary comes from the cross.  The cross is on the wall at the front of the room.  It is a golden color, though you can't see that now.  It is backlit, and this is the only light in the vast room.

I make my way slowly up the center aisle.  My shoes make no noise on the carpet.  I reach out and put my hand on the side of the wooden pew.  My hand bounces from pew to pew as I walk, but gently enough to not make a sound.  

I keep walking until I reach the steps that lead up to the altar.  Here, I stop and stand.  The cross shines, lighting up the altar.  Above me, way up by the ceiling, is the only stained glass window in the church.  I cannot see it in the dark, but I know it is there.

It is Jesus, holding out his arms.   Three phrases appear in the window: "My peace," "I give," "Unto you."  The way the window is designed, they can be read in any order.

My peace I give unto you.
I give unto you my peace.
My peace unto you I give.
Unto you I give my peace.
I give my peace unto you.
Unto you my peace I give.


Saturday, April 16, 2011

Cure (HAWMC Day 16)

Today's Prompt: You wake up, it’s some day in the future, and your condition or (any health-related issue) has been cured. You heard right: cured. And you’ve been chosen to cover this breaking news. It’s your big break: write the Press Release, interview the cure-founder, or visit the discovery site where patients everywhere are flocking to get in line. 

This prompt is quite creative, but I'm not sure I can do it.  I must admit that I'm having trouble with this prompt.  When I hear the word "cure," there's a lot of emotional baggage that pops up.  Those of us who've had D for a long time have been promised a cure for just as long.  

And as much as I want a cure, I can't bring myself to make light of it.  I want it so badly some days it hurts.  Most of the time, I'm ok with the fact that eating is complicated for me.  Sometimes though, it hits me hard.

Like last night, as we were watching TV, my husband sat there eating a giant bowl of ice cream.  Could I go have some?  Sure.  But full-sugar, full-fat ice cream is not good for the bgs, no matter how precisely I measure.

I don't remember what that feels like anymore.  To be able to sit and eat whatever I want, and not worry about what it might do to my blood sugars.  Today, that is hitting me especially hard.  I don't know why. Poor J.  He was sitting there, eating his ice cream, and his wife bursts into tears.  And he was wonderful and supportive as always.

I do want a cure.  Desperately.  But I try not to think about it too much, because honestly, I get upset when I do.

Now, the Artificial Pancreas Project?  I can talk about that all day.  To me, that seems much more realistic.  Something tangible that I can see happening in my lifetime.

So, sorry everyone, there will be no witty press release from me today.

If I do see a cure in my lifetime?  Then there had better be D-prom, with glitter and the DOC mascot, Sprinkles the unicorn.  Blunt Lancet will play, and there will be cupcakes galore.  And I will dance the night away with my DOC friends.

Until then, I try to hold onto hope...

Friday, April 15, 2011

Once Upon A Time (HAWMC Day 15)

Today's Prompt: Two Sentence Story- Simplify! Do the whole beginning, middle, end in just two sentences.

Once upon a time, there lived a girl who felt alone; no one could possibly understand what she was going through.  But then, she made some new friends, who did understand, and she didn't feel alone anymore.

Thursday, April 14, 2011

Lies (HAWMC Day 14)

Todays' prompt: let’s make lists that are 5-10 lines long – each line being a lie or misconception about your health condition.

I ate too much sugar as a kid
Life with D is no big deal
My diabetes can be reversed or cured
All lies

My D is mostly invisible
You can't tell just by looking
The toll it takes
Physically and emotionally
Don't believe the lies

Wednesday, April 13, 2011

And Then I Turned Around (HAWMC Day 13)

Today's Prompt: Open a book to any page. Today is a meditation on naming blog posts. Pick up a book, magazine, newspaper – anything with written prose in it – and choose a phrase or sentence at random. That’s the title of your blog post for today.

So I opened the book laying on the coffee table, Remarkable Creatures by Tracy Chevalier.  This is the line that caught my eye: "And then I turned around." 

Kinda profound.  Would've never thought to title a blog post that myself, but I really like it. 

Makes me think along similar lines as the picture in my post yesterday.  Sometimes, things happen when we least expect it. 

It's easier to focus on the negative.  It feels like I've been doing that a lot lately.  I've been having some burnout and apathy issues again, and then I got real people sick, so between the two, my numbers haven't been great lately.

A lot of my posts lately have been kinda whiny.  As have my tweets.  I'd like to thank everyone, DOCers and real-life friends and family, for all your support.  It means a lot to me to have so many people supporting me and thinking of me when I feel like crap.

But I'm ready to be done complaining, for a little while, at least.

And then I turned around.  I'm ready to turn around, metaphorically speaking.

This beautiful post by my friend Simon really got me to thinking (seriously, stop now and go read it).  It inspired me to really make an effort to focus on the "moments of awesome" in my day today, no matter how temporary or fleeting they may be.

And then I turned around...and the weather was amazing.

And then I turned around...and my husband kissed me on his way out the door.

And then I turned around...and my fasting bg was 88.

And then I turned around...and gave my mom a hug.

And then I turned around...and heard my students laughing.

And then I turned around...

Tuesday, April 12, 2011

Trees (HAWMC Day 12)

Today's prompt: Just find a picture or photograph online (Flickr Creative Commons is a great resource) that inspires you in some way and free write about it. It may inspire you positively or negatively. Give yourself exactly 15 minutes to write without stopping. And though you may want to –don’t think!

*Disclaimer: as per instructions, this post will be published without editing...gulp!  So please forgive any errors.  My former-writing-tutor self is freaking out right now...*

Ok, so here we go.  In searching through the pictures on Flickr, this one, Untitled by kizzzbeth really struck me.

I'm not really sure why I love this so much.  I like trees.  I've always liked trees.  The neighborhood I grew up in has a lot of trees.  I don't really like newer housing developments because of the staggering  lack of trees.  

Normally, I like trees with a lot of leaves.  Big, bright green ones.  Or trees in fall.  I LOVE trees in fall.  The college I attended had an abundance of maples trees.  Autumn on that campus is one of the most beautiful sights I've ever seen to this day.  Breathtaking.

Generally speaking, I think trees are kinda ugly when they lose their leaves.  They look naked and kinda sad.  Except when they're covered in sparkly snow--I like that.

But I really like this tree in the picture.  Even though it's naked.  Something about how all the branches are so twisted and curved in upon itself.  It's quite beautiful.

And how can I relate this back to diabetes?  Um, I really have no idea.  Except to say that sometimes, in the monotony that comes with the daily grind of D, something unexpected can pop up and surprise you.  In a good way.

Monday, April 11, 2011

Usually (HAWMC Day 11)

Today's Prompt: Wikipedia. Pretend you’re rewriting or adding onto your condition’s page – what sentence or paragraph should be included (in your opinion) on your the page.

Ok, first of all, I must say that I am quite impressed with what's there when you search for diabetes.  It has seperate sections on Type 1 and Type 2.  Woohoo!  And it even mentions LADA (although that section could stand to be expanded upon).

This line is both exciting and frustrating: "Both type 1 and 2 are chronic conditions that usually cannot be cured."

Yay for someone entering that BOTH types usually cannot be cured!  Woot!

Now the word "usually" needs to be removed, and we'll be good to go.

Both type 1 and type 2 are chronic conditions that cannot be cured.

Sunday, April 10, 2011

Apathy Is Easier (HAWMC Day 10)

Today's Prompt: Post Secret. You know the beloved PostSecret blog? Today’s prompt is to write down a secret that …really isn’t a secret.

Ok, so a secret, huh?  Or non-secret?  Hmmm....

Here's my secret: apathy is easier.  It's so much easier when I don't care what the number on the meter says.  When I eat whatever the hell and want and SWAG rather than counting carbs.

It's not better, and I feel like crap from being high, but it's definitely easier...

Saturday, April 9, 2011

Epic Fail (HAWMC Day 9)

Today's prompt: Health Activist Choice. Today’s blog post can be about anything you like. Free write! 

Well, I'm happy the HAWMC prompt today is a free-write!  It saves me from writing two posts in one day!

Here's the latest on the Reader's Digest drama.  None of us who emailed have heard back, except for Kelly, who has been calling and harassing them.  She finally got a response from Karen Reynolds, which is sorely disappointing!  You can read all about it here.  Warning: it will likely make your blood boil!

image credit here.
So I shot off another email to RD, including Karen Reynolds.  Here it is:

To Whom It May Concern-

I am quite livid right now.  I have seen the comment your publication put on my friend Kelly Kunik's blog, and it is infuriating! I have also read her additional post about her correspondence with you, Karen, and I have to agree with Kelly.

I understand you are trying to help people, really I do.  I also realize that you are not the only ones who use the "reversing diabetes" terminology.  But your rhetoric is dangerous.  Any publication or person who talks about how diabetes can be reversed or cured is recklessly spreading misinformation.  THIS IS NOT OK! 

I stick by what I said in my previous email (which I never received an answer to).  I personally know people with Type 2.  They have changed their eating habits.  They exercise.  They've lost weight.  And yet, they still have Type 2.  They still have insulin resistance and cannot get off of their meds.  How do you think that magazine will make them feel?

I second Kelly's concerns about this kind of rhetoric affecting research.  Both Type 1 and Type 2 need a cure!!!!  Karen, I realize you don't think this is a valid concern, but I do.  People are not going to want to fund research for any kind of diabetes if they think it can be reversed.  For example, Arizona is thinking charging people with diabetes an additional fee for their Medicaid!  Seriously!

How can you sit there and claim that language like this has no impact?

I DO expect to hear back from someone this time!



Ok, people.  Below is Karen's contact info (also listed on Kelly's post).  Please email and call her!  Make your voice heard!

Karen Reynolds
Publicity Curator
Reader's Digest Media
750 Third Avenue, 4th fl.
New York, N.Y. 10017

Friday, April 8, 2011

Never-Ending (HAWMC Day 8)

Today's prompt: write a poem where every line is a question.


Why do the questions never seem to end?
Not only those others ask, but I ask myself?
Why is my blood sugar high
when I've eaten this same thing before?

Did I not bolus early enough?
Is my insulin to carb ratio off?
Were there more carbs than I thought?
Should I have done a combo bolus?

Should I do some basal testing?
Are there bubbles in my tubing?
Am I getting sick?
Is it that time of the month?

Will the questions ever end?

Thursday, April 7, 2011

Hey D (HAWMC Day 7)

Today's prompt: Leave your health a text or a voicemail.

Hey D, it's Jess.  As you may know, I'm real people sick.  Started with a sore throat, and now it's moving into my head.  And ya, know, I really have enough to deal with without your help.  I can barely stop sneezing long enough to check my bgs.  I don't appreciate the high numbers.  So if you'd just leave me alone for a few days, that'd be great.

Thanks.  Bye.

Wednesday, April 6, 2011

Three Reasons (HAWMC Day 6)

Today's prompt: I write about my health because...

I write about my health for three reasons.

One, I write about it for me.  The blog, as well as Twitter and Juvenation, are places where I can vent.  If I have a terrible bg day, I can say that, and other people with D know EXACTLY how I feel.  There's no need to explain or validate--they just know.

And when I'm struggling and write a post about it (like this one, or this one, or this one) the support and love I receive is overwhelming.  Thank you.

Ok, reason number two.  I also write about my health for other people, especially other PWD.  The first people I found online were C and Kim.  I met both of them through Juvenation, and eventually found the rest of the DOC.  Ladies, you are rockstars!  Reading blogs of other PWD as well as parents of CWD helps me more than words can explain.  You know that "D Blogs I Adore" list to the right?  Yeah, I really do read ALL of them.  I know it sounds cheesy, but if something I write can help even one person to not feel alone, then it's all worth it.  That's all I want.

The third reason is to advocate.  I want to take a minute here to thank all my non-diabetic friends and family who read this blog.  Thank you so much!  I know it can be a lot to muddle through--plenty of strange terms and boring details--but the fact that you read it and you care means so much to me.  It really does.

Helping those without D understand what it's like to live with it is a form of advocacy.  So is traveling to DC and sending emails and phone calls to publications who are reckless in their discussion of D.

So, in short, I write about my health for my own to receive support, give support, and advocate.  That's it.

Thanks for listening.  Err...reading, I guess...

Tuesday, April 5, 2011

Haiku (HAWMC Day 5)

Today's prompt: write a health haiku.

Up early today
Time for site and sensor change
Off to work I go

*for info on Blunt Lancet see here, herehere, and here.