Sunday, September 18, 2011

My Turn


So this past week was Invisible Illness Week.  And lots of my blogging friends have done this meme, and I've enjoyed reading them all!  So here, on the last day of this week, I decided to go ahead and do the meme myself.

Also, please be sure to check out the posts from Kerri, Abby, George, Babs, Reyna, Meri, Penny, Joanna, Kim, and Alexis.  Please forgive me if you did the meme and I missed it.

My turn! :)

1. The illness I live with is: Type 1 Diabetes

2. I was diagnosed with it in the year:  1993

3. But I had symptoms since: several months before (see this post)

4. The biggest adjustment I’ve had to make is: Well, I can't really remember not having diabetes.  But I would say being different from other kids

5. Most people assume: People assume that I can't eat sugar..

6. The hardest part about mornings are: When I wake up either too low or too high.  Throws the bgs off for a good part of the day, and makes my I-am-so-not-a-morning-person self even more of a grump.

7. My favorite medical TV show is: I used to be a big Grey's Anatomy fan, but not so much anymore.  Turned into too much of a soap opera.

8. A gadget I couldn’t live without is: Only one?  Cause I need my meter, insulin pump, and CGM.

9. The hardest part about nights are: Nighttime lows are my greatest fear.  No question.

10. Each day I take a few pills & a couple vitamins.  And INSULIN!  Without it I would die.

11. Regarding alternative treatments: There are none for Type 1 Diabetes.  No, losing weight and eating a crapton of cinnamon isn't going to help!

12. If I had to choose between an invisible illness or visible I would choose: I like that I can hide my diabetes when I choose to.  But sometimes I wish other people could tell just by looking at me how effing hard this is.

13. Regarding working and career:  I HATE it when my diabetes interferes with my ability to do my job effectively.  HATE it.  And I would love a career helping other people with diabetes with the emotional aspects of coping with the disease.

14. People would be surprised to know: How emotionally exhausting and draining living with diabetes is.  I may act like it's no big deal, but that's not true.

15. The hardest thing to accept about my new reality has been: Like I said, I don't remember not having diabetes. Not a new reality for me. 

16. Something I never thought I could do with my illness that I did was: I've never thought of my diabetes preventing me from doing anything.  I've accomplished everything I've wanted to do in my life thus far, and I'm proud of that.

17. The commercials about my illness: Vary.  Most are aimed at Type 2.  Some are ok.  Some are full of crap and make me angry.

18. Something I really miss doing since I was diagnosed is: being able to be a kid for just a bit longer.  Diabetes forces kids to grow up too fast.

19. It was really hard to have to give up: Again, can't really remember.  But sometimes I wish I could just eat food and not have to think.

20. A new hobby I have taken up since my diagnosis is: Same answer as about everyone else- blogging! :)

21. If I could have one day of feeling normal again I would:  Go to my favorite restaurant and eat nothing but desserts.  Then go for a nice long walk without carrying anything but my iPod.  And not carry a purse all day!

22. My illness has taught me: Diabetes has taught me that I am stronger than I think I am.  And that perfect strangers can become my best friends.

23. Want to know a secret? One thing people say that gets under my skin is: Oh, you can't have sugar, that must be so difficult.  Grrrr....

24. But I love it when people: ask me about my diabetes instead of assuming things about me.

25. My favorite motto, scripture, quote that gets me through tough times is: You Can Do This!  And Zephaniah 3:17.

26. When someone is diagnosed I’d like to tell them: This is a difficult journey, but you can do this.  And you are NEVER alone!

27. Something that has surprised me about living with an illness is: I am never alone.  And our shared pain brings us all closer together.  I love the DOC!

28. The nicest thing someone did for me when I wasn’t feeling well was: my wonderful husband does more for me than I can type here.  He lives this disease every day with me, and does so much to help.  I love you, babe!

29. I’m involved with Invisible Illness Week because: I want other people to know that they can do this, and you are not alone!

30. The fact that you read this list makes me feel: happy and honored.

3 comments:

  1. Love the "dessert" comment! THAT is awesome.

    Great 30 Jess.

    ReplyDelete
  2. i looked up Zephaniah 3:17
    it is beautiful

    "The Lord your God is in your midst,

    a mighty one who will save;

    he will rejoice over you with gladness;

    he will quiet you by his love;

    he will exult over you with loud singing"

    p.s. thanks for the mention 8)

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  3. Great mottos to recognize. Thanks for your great list. I think you hit a great point about it being visible on our own terms when we want it to be, but that sometimes it simply does suck when we lose time (especially at work) as a result of D. Thanks for this List of 30, Jess.

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