Wednesday, July 27, 2011

Happy Birthday, Insulin


Happy Birthday, insulin.

Life with D is hard.  If you or someone you love lives with this disease, I don't need to tell you.  You already know.

But today, I can feel nothing but grateful.  I am determined to have a wonderful day.  I am determined not to let my blood sugars upset me, whatever the number is.

I am sitting here, getting ready to change my set, and feeling rather emotional.  Teary even.

It's a hard life.  But it's life.  Thanks to Banting and Best, I am alive.  I can be annoyed at these stupid highs the last few days because I am alive.

I am alive.

Happy Birthday, insulin.

Friday, July 22, 2011

Wonderful Outrage

Ok, so I know the title is kinda random, but work with me here...

The first thing I want to tell you is that today, I have the honor of guest posting over at Sara's blog, Moments of Wonderful.  So check it out!

Sara and I met at Friends For Life, and I absolutely ADORE her!  We're like long-lost sisters or something--I think we're starting to scare some people...

While you're there, be sure to check out some of Sara's posts because she is AMAZING!

_________________________________________________________________________________

Ok, on an unrelated note, you need to stop what you're doing RIGHT NOW and go listen to DSMA Live from last night.  The guest was Professor Jean Claude Mbanya, President of the International Diabetes Federation.

If maybe you're working and can't listen right now, I guess that's ok. ;)

But PLEASE do take the time to listen!  He and the IDF are doing some incredible things, and they need our help!

I'm sick, so this post is going to be short and sweet, but IDF has several things going you should check out:

Life For A Child
I Agree
O Is For Outrage

Jean Claude spent some time on the show talking about how important it is for EVERYONE to get involved.  Even one person makes a difference.

So please go take a look.  And tell everyone you know.  No child should have to die because they don't have access to insulin.  Families should not have to starve in order to try to afford insulin for a child with diabetes.  No parent should ever have to feel relieved that their child with diabetes has died because it means the family can eat again.

Please see these posts from Kerri, George, and Kelly for more info.

Show your Diabetes Outrage!

Tuesday, July 19, 2011

Amazing

My husband is amazing.

Photo courtesy of Sara


I've written about this before (see here, here, and here).  I've been thinking a lot about just how amazing he is because of everything that happened at Friends For Life.  Also, since the DSMA topic last week for both the twitter chat and radio show was significant others, it seemed an appropriate time to share these thoughts.

Josh's initial reaction to my "Hey-Honey-let's-go-to-Florida-for-a-week-and-stay-with-people-I-met-on-the-internet" was, of course, "You wanna do WHAT?"

But when he saw how badly I wanted to go and how important it was to me, he agreed.

And not only did he make the trip with me, but he attended all the focus groups and sessions with me.  Well, some with me and for others we went to different ones, but you know what I mean.  Also, you may notice he's in a lot of pics in different FFL posts, which makes me smile. :)

Josh cares about all of this stuff just as much as I do.  He understands all of this diabetes craziness as much as someone without diabetes possibly can.

I love him.  A lot.  And I was so, so happy to have him with me at FFL.

And I know Josh was happy to be there too.  Despite his initial reservations, and the fact he hadn't tweeted copious amounts with the adult PWD in attendance, he had a wonderful time.  I know that he made friends for life too.  And not entirely thanks to that old t-shirt featuring The Cheat, though that was a big hit!

Josh has always been supportive of my involvement in the DOC, which I am thankful for.  But now, he is getting involved!  He joined Twitter, and participated in the DSMA chat on Wednesday.  It makes me SO HAPPY to watch him get to know all my DOC friends.  I love you all!

Photo courtesy of Martin


And this is the part where I want to thank my friends.  You all accepted him as part of the crew, even with his fully-functioning pancreas.  Thank you.

George, this post from you made me burst into tears.  And Scott, your kind words on DSMA Live made me choke up too.  And Sara and Martin, your comments and love bring tears to my eyes too.  I'm just a big crying mess lately, I guess!

Josh, I love you.  Thanks for always supporting me in all areas of my life.  Thanks for coming to FFL with me, as crazy as it sounded.  Thanks for getting involved, and making my friends your friends too.

And to my DOC peeps: thank you all!  Thanks to you, Josh has new friends, in spite of his ability to produce insulin.  I love you all!

*Disclaimer: We paid for all expenses involved in attending FFL, including airfare, hotel, food, and conference fees.  I was not asked to blog about the experience, and all the thoughts are my own.*

Wednesday, July 13, 2011

More FFL Gushing


There are so, so, so many things from Friends For Life that I want to tell you about.  I hardly know where to begin.  I did attend some great focus groups and sessions, but I'll save that discussion for later.

I know I talked about this yesterday, but getting to hang out with an awesome group of PWD's for almost an entire week was truly life changing.  I know that sounds cheesy, but it's true.  I got to hang out with these people all week!  I wasn't expecting to get so close to people in the space of a week.  But I totally did and it was totally awesome!

photo courtesy of Martin

More awesomeness: I finally got to meet C!!!!!! :D

photo courtesy of C

She is THE FIRST PERSON in the DOC I ever talked to!  When I joined Juvenation, she was the first to welcome me.  And we discovered we had a lot in common.  And then I joined Twitter and we talked even more.  And then I got to hang out with her.  It was awesome!

Another fabulous thing was meeting new people.  I mean, people I hadn't talked to on Twitter.  Shay is one of my new favorite people!  I loved getting to know her!  Be sure to check out her post about the week.

photo courtesy of Sara

As you may have noticed yesterday, we spent some time in the pool.  It was really fun!  But you know what was really awesome?  The fact that every other person had a pump and/or set and/or tubing and/or CGM sensor hanging out for the world to see!  For the first time in as long as I can remember, no one at the pool was staring at me!  At least not for the CGM sensor stuck to my arm... ;)

Roomies rockin' the arm sensors!
Photo courtesy of Martin

Of course, my blood sugars were all over the place all week.  Considering the crazy schedule, lack of sleep, and consumption of giant M & M cookies (I'm looking at you, Martin), it's really not surprising.  So, high blood sugars plus dehydration (too much Diet Coke) equals ketones.  I have ketones in this picture, as we were waiting to go to Downtown Disney.

photo courtesy of Sara

I know it doesn't look like it, but I felt pretty lousy.  But if having ketones can be at all pleasant, this experience was.  I was surrounded with people who understood.  There were no funny looks, no questions.  A simple, "I have ketones," and they knew exactly how I felt.  Bottles of water were procured.  Bathrooms were found so I could pee on those lovely strips.  High-fives were given when ketones were gone.  And they were gone in time to enjoy dinner!  Woohoo!

And I had the BEST ROOMMATES EVER!!!!  Well, technically we were condo-mates.  Details.  Yes, Josh and I stayed in a condo with Martin, Jacquie, and their significant others.  We had so much fun!  But we also talked about some serious and scary stuff that comes along with diabetes.  And again, it was incredible to talk with people who totally, completely understand.

Pump party roomies!
photo courtesy of Jacquie

Also, we all three use Medtronic pumps and CGM.  Which made for a lot of beeping.  And it is impossible to tell from whence the beep came without everyone checking.  Ah, good times.

Seriously though, it's cheesy as hell, but I made friends for life.  Most definitely.

photo courtesy of Sara

Edit to add: *Disclaimer: We paid for all expenses involved in attending FFL, including airfare, hotel, food, and conference fees.  I was not asked to blog about the experience, and all the thoughts are my own.*

Monday, July 11, 2011

Indescribable

So I just got back from the Children With Diabetes Friends For Life Conference.

And there aren't enough words.  The week was indescribably amazing!

There's a lot I want to say, but too many thoughts are swirling around my exhausted brain.  So, for now, here are some things I learned.

I learned that it is possible to do both the Cupid Shuffle and Cha-Cha Slide in the swimming pool.

photo courtesy of Sara
That it's not crazy to stay in a condo with people you've never met and stay up till 3am every night talking.

photo courtesy of Martin
That no free wi-fi is no excuse not to participate in the DSMA Twitter chat!


That I have not laughed so much in a long, long time. 


That the Guest Assistance Pass at Disney World is one of the best things to ever happen to me because of diabetes.


That Sam Talbot is really hot.  And nice.



That I feel like I've known these people all my life.


That it's possible for a charm you bought to add to your medical ID bracelet to make you cry.


That I have the best husband in the world.  Which I already knew.  And that Scott likes to photobomb.


Next year, someone needs to win the lottery or something so everyone in the DOC can go!

Edit to add: *Disclaimer: We paid for all expenses involved in attending FFL, including airfare, hotel, food, and conference fees.  I was not asked to blog about the experience, and all the thoughts are my own.*

Saturday, July 2, 2011

Livid

So I was going about my business Friday night, when I got an email that someone had followed me on twitter.  It was something about curing diabetes.


Great, I thought.  More spam.


Only a little investigating revealed that it wasn't spam, but a real twitter account with someone claiming to be a doctor with a cure for insulin-dependent diabetes.  Even better.  Not.  BLOCK!!!!


A friend on twitter had also been followed by this person, and had said in the most animated terms to back off and leave them alone (my paraphrase- the actual tweet was much more colorful)!


So the two of us had a little conversation about blocking this account and how they were full of crap and spreading misinformation.


Today, my phone buzzed to tell me I had this mention:


"@jessmeandd So u rather keep ur diabetes than be cured? MAN U MUST REALLY ENJOY HAVING IT. HOW STUPID CAN ONE BE? I GOT CURED!! reTwEET!"


This tweet was not from that "doctor," but from someone claiming to have been cured by him.


REALLY??????


I am livid.   This was several hours ago, and I'm still pissed!!!!  Had I written this post right away, it would have needed a big disclaimer about foul language!


What I really wanted to do was tweet this asshat back and repsond in kind.  


Instead, I said a long string of curse words, and took a deep breath.


I blocked this asshat too.


And I am NOT retweeting those ugly words.


Nor am I going to name either account involved in this whole thing.


As much as I want to let the whole DOC attack these idiots, I am not going to do that.


Because it would bring them attention.  And they do not deserve our attention.


They deserve to be ignored. 


So, you asshats, I will ignore you.  I will not let you ruin my day.


My fellow diabetics and I are stronger than you could ever imagine.


You are not worth ANY of our time.