Thursday, January 23, 2014

Phantom Pump Sites

There's a lot of things about living with diabetes that can makes us feel alone. Some are big, and some are little. But if there's one thing the Diabetes Online Community has taught me, it's that we are never rarely the only one to experience something.

I was pondering a little thing earlier today. Last week, I had a set on the side of my butt. At least once a day, that spot starts to itch and/or hurt a bit, and I think "Yikes, that set is annoying!" Only to then realize there's no set there. Nor does the skin appear red or irritated at all. Seems like it's all in my head. Phantom set pain, maybe?

It's happened to me before too. I sat there, wondering if I was the only one who ever had this problem. So I decided to take to Twitter.

And my suspicions were confirmed. Phantom pump site pain is totally a thing.

It's a little thing, but that "me too" is an awesome feeling.


  1. Yes, it most definitely is a "thing". Phantom CGM sites, too. But for me, it's usually 24-48 hours after I've removed the old site, not the first day. Is that really a "thing", or is it just me?

  2. Yup - how weird as I was just thinking about that today. I just thought I was odd. How nice of you to let me know that I'm not too odd. :)

  3. Yup! Wrote about it almost two year ago in fact!

  4. Yes. Totally a thing. Or at least it feels like a thing. That is still there. But used to be there. Well... I get your drift.

  5. I get phantom sites all the time!

    They say that you can experience phantom limb sensations if you wear your phone on your belt and are accustom to the buzzing. When you have a thing stuck in your body continuously for 3 days (7 for dex), I think that makes it even harder for our bodies to recognize that the thing has moved!